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PostPosted: Mon May 25, 2009 6:27 pm 
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Joined: Mon Oct 29, 2007 11:37 am
Posts: 74
Location: Virginia
[font=Comic Sans MS]Hi bkorea, welcome.

Telling or not telling is such a personal decision. The dr. and I told my father and for us it was a help. It gave him a diagnosis, a reason for his mind slipping away from him. Plus, he was diagnosed only 4 months after Mother died, so it helped me to know that it wasn't just his grief.

He would do something that made no sense and later call himself a "crazy man." Broke my heart but it helped us both for me to be able to say, no Daddy, you're still the same intelligent man as always, it's just this awful disease that is messing with your mind. That followed by a hug, always satisfied him in the early years.

Clearly he has some signs of dementia but you are wise to have all the tests to determine what type of dementia and what can be done. I'm glad you found this message board. Come often for support and a vast array of experience and wisdom.
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Ann

"When we can't press forward, move sideward, or step backward, it's time to look upward and to ask God to make a way." Robert J. Morgan


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PostPosted: Fri May 29, 2009 1:42 am 
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Location: Torrance, CA
bkorea,

The symptoms you mention do sound typical of AD, but they can also be indicative of many other things as Aitan mentioned. A diagnosis of AD is basically a "none of the above" so to have confidence in the diagnosis there are a lot of other paths you and the doctors need to explore first.

PBS put out a 2 hour special on AD called "The Forgetting" which is now available on DVD and airs from time to time. They have a website and it's a very informative little special. They discuss some new technologies that will eventually allow doctors to image the specific microscopic parts of the brain that are indicative of AD, but it's strictly experimental today.
PBS - The Forgetting

HBO also just aired a series of shows called The Alzheimer's Project. They are available to watch for free on their website. I have not watched them yet, but I'm sure they are very informative and a little bit more current than the PBS documentary from a few years back.
HBO - The Alzheimer's Project


Regarding whether or not to talk about the diagnosis, it is completely up to the person in question. You have to be the judge of whether or not it will be helpful or appropriate to discuss it openly. I personally believe that if you fear something and are afraid to face it you give it power and increase your fear, and facing it openly makes it more manageable. This obviously does not work for everybody.

In my grandmother's case she was in denial from the very first day in 2000 when she was diagnosed. A year or so later, out of the blue, she called my mother and took her to a lawyer to sort out all the legal matters. She spoke as little as possible the entire time and never acknowledged why they were there, and proceeded to pretend she didn't have it for the next 6 years or so.

At that point she was beginning to get very frustrated and feel very alone. She didn't know anybody else with the same problem and she was beginning to feel very stupid all the time. I got her an easy reading book that was an AD patient's autobiography, and it helped her a lot. For about a year she knew that she had AD, knew that she needed help, and more readily accepted my guidance even when she didn't understand it.

That period passed and if you ask her today she doesn't have it, doesn't need help, isn't forgetful, and is just the same as she's always been. She was doing just fine until I moved in and took over everything. Now she doesn't know where things are, can't remember how to cook, etc. It's apparently my fault, because she was doing just fine before. =-)

It would be SO helpful if people had the clarity of thought to see their illness, admit they need help, and take proactive steps. Unfortunately the ability of self diagnosis disappears very early on. Your father may have always been stubborn, but if he really has AD then he's not being stubborn in the same way as he was before. If the diagnosis of AD is correct then may not have the ABILITY to perceive the truth, and you can't just treat him as if he's being stubborn.

Long story short, I recommend testing the waters and talking about AD openly. In theory it shouldn't be any more taboo than talking about a broken finger. Be sensitive, though, and be prepared to cease and dance around the issue for the rest of his life if that's what he needs from you. Three words I can no longer use around my house are "Alzheimer's", "memory", and "forget". They're sure to trigger a frustrated and angry response every time.

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- Jezza
Caregiver of my grandmother Laurette.


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 Post subject: Re: My Father
PostPosted: Mon Jun 22, 2009 12:48 am 
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Joined: Thu Oct 11, 2007 9:15 pm
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Location: Waterford MI
With mom, it involved money and the car. For the money, she was leaving her wallet everywhere, she would tell me at 11 pm that she thought she might have left it at a gas station, and I'd have to go up there to ask. She once left her wallet on a shelf in Target, thank God some wonderful person took it to the service desk. She would lose her credit cards, I would find them all around the house. Her bills were being paid late because she paid them all online and would not remember her password. She would get it reset, write it down and then lose that piece of paper.

With the car, it was a couple of awful accidents (1 got her a ticket for careless driving), pulling off the road to talk on her cell phone and getting a ticket because she picked a HANDICAPPED space to park in, and the real capper to it was she would call me every weekend to come and help her find her car in a parking lot wherever she had shopped.

I later figure out also that she was getting lost a lot - if she went to a store and should have been back in an hour, she wouldn't come back for 3 hours.

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Judy, caregiver to my mom, Joan


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 Post subject: Re: My Father
PostPosted: Thu Jun 25, 2009 11:21 am 
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Joined: Mon Oct 22, 2007 9:34 am
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Location: SE Michigan
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Welcome, bkorea. I'm so glad you found our little group...........the support here is priceless.

One of the first things I noticed about my mom was her inability to manage the remote for the TV. She would call almost every day and ask how to get a certain channel she wanted to watch. And a personality change from a very independent woman to being a lot more needy. And, of course, memory problems, mostly forgetting words.

I brought her to live with me when she could no longer be alone and she was with me until her death in 2007.

You asked about talking to your father about AD. It's your call, based on what you know about him and what he would want to know. My mom became very frustrated and angry when her ability to come up with the right word eluded her, or when she couldn't remember something. She often told me she was either crazy or stupid. I would tell her that she still had all her memories but she had a disease that was building walls in her brain that the memories couldn't get past and that's why she had trouble with words/memories. (She was an RN and still retained knowledge about neural pathways somehow..... :) ) I followed that with a hug and she was always calmed and reassured after our "talk." We never discussed the grim details of her prognosis, other than the fact that it would eventually kill her, and she was okay with that....(from the time she came to live with me she believed she should die any day and was just waiting for it to happen.... :shock: :o :lol:

I hope you visit here often and take advantage of the wealth of knowledge and support from our members. You are NOT alone anymore.


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