I was told by my neurologist that the meds that meds that I am on for aggression were right on target and to tell my psychaitrist to adjust the doses and keep me comefortable. This is the same neurologist that used to tell me to hold there is new stuff coming around the corner and we are close to a cure. It has been 3 visits now since I have heard those words, they no longer exist, at least not for me. Someone out there will someday will benefit I am sure but for me it is comfort care in controlling the symptoms. I had the best doctor, the best care but science just doesn't havee the speed to help those in need as myself. My heart goes out to those that are newly diagnosed as I know the journey that they face is a hard one. One that no man can ever dream of as it is a nightmare in disguise. So, now I live for the moments of peace and have high hopes of my family finally understanding the disease that it really does exist in me. We have a care consult with our local Chapter on the 15th of Jan, for 2 of my sisters and one brother to come and understand what these last 7 years have been like for my husband, son and I. They tell me now, "you are too young to have this disease." and "it is only your mind deterioirating, it isn't like it is fatal". OH, but it is I shared with them. I leave the rest up to the Chapter to shake them into reality. You see, I was one of the lucky ones if you can call it that, I was diagnosed in the very earliest of stages and put on a medication regimen right away along with namenda which is the blessing to this disease. We should always count our blessings as one day they will become less, but the time we had was ever so precious. I live each day in the moment never knowing what to expect, don;t really make plans anymore, just let come what may. I laugh alot more than use to as life is funny in ways that you will never see until you have dementia. Sure there ar tears too but those can be wiped away and replaced with a smile. It has been a loooonnnnnngggggg 7 year journey thus far. My joy is living for my 15 year old son, I truly think he has brought me this far. I knew he needed me and still does but he is growing into a nice young man now and soon will have a life of his own. Then I will be free to stop fighting this disease and gain my very own wings. But until then, I remain here and live on as if there is no tomorrow.

Tracy

I love you Tracy and I love all that you did in helping me understand how Bill felt..
You've done so much to help all of us. It's no surprise that your son is growing into a nice young man. He has you as an example.

I so admire the courage you face this disease with. May God always walk by your side.

Dearest Tracy,
There may not be a cure, but you certainly have the right key! You have a wonderful attitude. Something we all admire.

We are with you, every step of the way.

Our love and prayers are always with you.