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I'm new to forum & have been "toying" with the idea of an adult daycare...one problem, which is the big one, no money. I'm new to this "full time caregiver" position & am still researching what's available to patients with medicare, medicare supplement insurance & medicare Rx (yeah right), but anyway that's another topic.
I've recently lost myjob in Florida (after 20 years with same company) so we've moved our entire family here to TX because cost of living is lower, climate is better (west texas is anyway), parents in law retired from Military base here years ago, and it's hubby's "hometown" where he was born & raised. SO....here I am in TX (native Floridian) with my family, unemployed, and now a full time caregiver, without a flippin clue.....afer episode that ended in Hospital trip for Mom, we figured out dehydration (again) & albuterol are a bad combo. No more albuterol. Thought she was going into a ltc at that point, but she's snapped out of the worst part & is back to her usual. She's solid stage 5 & could teeter over to stage 6 anytime it seems, but maybe I'm just afraid....We were definitely in a 6 during the week of New Years, but after major re-hydration & a prescription for Ativan, things got better. We have a Home Health Care RN coming once a week to monitor her care & "re-certify" her as needed. Like I said, I'm in the dark about this...
With the financial situation my Mom is in, and Iwon't go into details, that's for our Attorney to handle, she cannot get medicaid right now, so we're here at home, and that's ok. I've contemplated getting a job in the wee hours of the morning (like 3 to 6 shift or something) but am not so sure I can do that.
I have chronic active Hep C (transfusions in the 1970's) and am not able to take treatments anymore (almost did me in late last year so I'm now considered "not treatable, non responder") so next step for me is transplant list in the even the liver disease takes my liver out. I don't drink (haven't touched a drop in 20+ years), don't smoke & don't take any drugs unless prescribed by physician. Hubby has it too, and is diabetic to boot (insulin dependent). SO....it's a long day most days....
I'm weary & feel like I'm in a losing battle some days. I feel guilty when I'm not constantly searching for answers & help for Mom. I'm feeling like I'm becoming obsessive about alz/dementia now. Perhaps my fears are creeping in...me next? I also see signs of MIL having dementia. Yesterday, as I was making (THE SAME DAMNED SALAD I'VE MADE FOR 25 YEARS) potato salad, she gets outa bed, marches into kitchen, looks at bowl with egg, DICED PICKLES, mustard, onion, parsley, celery, mayo) and says "PICKLES!!! WHY PICKLES????? I guess I won't be eating any potato salad tonight..." in a very nasty tone of voice. I was stunned and it must have shown, although I tried not to react to harshly. So I quietly said, "you've always loved my potato salad & this is the way I've always made it" and then she continued to argue that "no, you made it with sour cream one time" & I said no I've never made it with sour cream, that must be someone else & you're remembering wrong. WRONG MOVE. Anyway, argument ensued, she was peeved & let me know it. I walked away before I said something I'd regret...thinking how cruel she was to bring my Mom into it with the comment of "there's nothing wrong with my memory...besides, there's already enough crazy people around here as it is..." Knife in heart. Which is why I walked away.
Another incident: A week ago she had laser surgery for Age related Macular Degeneration & I am the driver of the car. On the way home, she said "let's stop at burger king" so I said ok but we have to hurry because John (FIL) has his PT this afternoon. MIL says "no that was yesterday". I say, "Mom (I call my MIL "Mom" too) you went to have your hair cut yesterday afternoon at 3:00 & John was home because you had the car". Silence...then "No, he went yesterday". I've learned to let it go & not argue. So, to appease her, we go thru drive thru at Burger King. She gets FIL lunch too...We walk in door @ house, he says "what's that?" about the bag from BK, she says "lunch", he says "I have PT today so I already ate"...she looks at me with looks to kill...I walk away to my room.
OY VEY!!! Then hubby comes home from work & wonders why I'm bordering on a nervous breakdown. Hmmm...let's see, try doing this job 24/7 pal. Love the guy,he's great, but sometimes clueless. He cried when my Mom was in the hospital, twisting the sheets & carrying on like she was talking to long gone relatives. Very good guy, but clueless sometimes.
Ok-enough rambling outa me. Thanks for listening...
_________________ DianeJ
El Paso, TX
Living together with hubby, MIL, FIL & Mom, 3 dogs & 1 cat. Full time caring for my Mom at home with V/Dementia stage 5.
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