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 Post subject: YoungHope
PostPosted: Tue Nov 11, 2008 1:26 pm 
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Joined: Fri Nov 02, 2007 7:25 pm
Posts: 1387
Location: Michigan
Highscores: 18
I know I was gone for a long time, but now that I'm back, I don't see Tracy anywhere. Does anyone know how she is doing or is she still around and I can't find her.

Tracy, if you're here stop by just to say Hi so I know you're ok

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I wish you enough.

Joyce L


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 Post subject:
PostPosted: Tue Nov 11, 2008 8:01 pm 
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Joined: Thu Oct 25, 2007 8:44 pm
Posts: 469
Location: Jackson, MI
I checked over on the ALZ.com site, and she had a post back in October there. But nothing else that I can see.

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Debra
also known as MundeeB

Smile--it makes people wonder what you're up to!


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 Post subject:
PostPosted: Tue Nov 11, 2008 9:34 pm 
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Joined: Mon Oct 15, 2007 2:00 am
Posts: 1154
Location: illinois
Highscores: 3
Yes Tracy, what are you up to these days? Give us an update when you can. We all think of you often, and miss your input to us on AD.

Jackie

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Friends witness sadness and catch tears with tenderness.


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 Post subject:
PostPosted: Fri Nov 14, 2008 4:14 pm 
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Joined: Wed Oct 31, 2007 7:25 pm
Posts: 410
Location: NW Washington
I was thinking the same. Did her documentary ever get shown?
karen

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Real Reason
There are things you do because they feel right & they may make no sense & they may make no money & it may be the real reason we are here: to love each other & to eat each other's cooking & say it was good.
storypeople.com
"


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 Post subject:
PostPosted: Fri Nov 14, 2008 7:16 pm 
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Joined: Fri Nov 02, 2007 11:43 pm
Posts: 16
Location: OC., CA
She's very active on this site:

http://health.groups.yahoo.com/group/dementiarescue/

You can drop in and say hi there & tell her to
come back over. :)


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 Post subject:
PostPosted: Fri Nov 14, 2008 9:58 pm 
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Joined: Mon Oct 15, 2007 2:00 am
Posts: 1154
Location: illinois
Highscores: 3
Got this from her via email on Wed. I will email her also and ask her to contact us and read the forum.

Dear Friends,

Many of you know that I have worked very deligently from sun up to sun down in regards to a respite camp for young teens. That camp took place this past July for the very 1st time as well as it is the only program in the U.S. such as this. With the attendance of the first 10 teens and the camp being a GREAT success, Austin's Camp Building Bridges has now been accepted and taken under wing so to speak by the Oklahoma/Arkansas Alzheimer's Chapter. The program will be taking place again this year in Chouteau, Oklahoma at Camp Takatoka July 19-25th. I am also proud to say that the National Associaton is endorsing the program and the campsite is now listed on their National Website under "ALL EVENTS" with the conferences.

I have already received a couple of grants but in order to keep the camp rolling year after year, please note that donations are accepted 365 days a year. With the continued help of other Chapters investing their time, etc. Our hope (my family) is for this program to become a regional program. I have had to learn that this all takes place in baby steps and am proud to say that we are now walking. You can visit the Camp Website which will give you all information and details you should need, but feel free to contact me with other questions if you don't find your answer.

http://www.alz.org/news_and_events_upco ... p#calendar

Sincerely, The Mobley Family

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Friends witness sadness and catch tears with tenderness.


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 Post subject:
PostPosted: Fri Nov 14, 2008 11:30 pm 
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Joined: Thu Oct 11, 2007 8:25 pm
Posts: 796
Location: Virginia
How absolutely wonderful. Thanks so much for following
up on this, Jackie, and for getting the ball rolling, Joyce!
Carol

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I can't have Aragorn either... but I can still fight in the Battle for Middle Earth...


Last edited by Carol on Fri Nov 14, 2008 11:32 pm, edited 1 time in total.

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 Post subject:
PostPosted: Fri Nov 14, 2008 11:32 pm 
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Joined: Fri Nov 02, 2007 9:48 pm
Posts: 122
Dear Friends and I do mean Friends, though we are hundreds maybe thousands of miles away we are here for each other. I apologizee for my abscence, so much has been going on. about 2 months ago I tripped on a blanket and have been recieving therapy for my right leg. then I tripped again about a week ago falling on the same leg and an waiting for a brace for suppport. I have been very active with preparing for the camp for next year, at this moment I think it is my sanity. I have been having back pain and woke up the other morning in such excruciating pain my husband took me to the ER and they gave me pain meds and did x-rays. The x-rays showed something called spondlytheliosis, I think is how you spell it and anyway the doctor told my husband I needed to see a surgeon right away. If I fall again the wrong way I could paralyze myself. So that is pretty scary. My husband does most everything for me, laundry, dishes, vacuuming, etc. I go see the surgeon this coming Tuesday. As for other stuff, I can no longer tell time on a regular clock unless it is straight up on the hour, so we have gone to digiital clocks. My temperature sensor is broken basically, I will shower in scalding hot water and not know it is that hot, so my husband has adjusted the heater. My short term memory is shorter than short and I no longer remember our pets names. My docotor said all of this was signs of progresion. so, considering I am still my old cheerry self. I do think of each of you often, but don't write as well as I use to. Please don't feel sorry for me this is all part of the disease process and we knew it would happen sooner or later. I am on stronger medications for aggression so that keeps me somewhat down

Love & Hugs to you all!!!

Tracy

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Tracy (younghope)
EOAD, diagnosed 38 years old
Advocate for AD
Younghope The Broken Road
www.amazon.com


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 Post subject:
PostPosted: Fri Nov 14, 2008 11:34 pm 
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Joined: Thu Oct 11, 2007 8:25 pm
Posts: 796
Location: Virginia
Oh, Tracy, thank you so much for popping in and giving us the
first-hand scoop. I am sorry to hear of your progressing difficulties.
Please rest assured that the work you and your family are doing
in education about this disease and with the camp has a value
beyond mere words.
Forever gratefully yours,
Carol

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I can't have Aragorn either... but I can still fight in the Battle for Middle Earth...


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 Post subject:
PostPosted: Sat Nov 15, 2008 5:22 am 
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Joined: Sat Nov 10, 2007 4:19 am
Posts: 229
Location: Torrance, CA
It's so nice to hear from you Tracy. Keep hanging in there! You're amazing.

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- Jezza
Caregiver of my grandmother Laurette.


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 Post subject:
PostPosted: Sat Nov 15, 2008 9:10 am 
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Joined: Fri Nov 02, 2007 7:25 pm
Posts: 1387
Location: Michigan
Highscores: 18
Tracy,
You are so much a part of our lives. We all miss you. I wish there was something we could do to get rid of this terrible disease and all our LOs and that includes you could be well.
You have done so much, but even as you are slowing down and can't write as well as you use to, we still like to hear from you. I will never forget all the things you have told us that helped me in understanding what is happening to Bill.

We love you and miss you. Remember you don't have to write a lot, just stop in and say "Hi".

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I wish you enough.

Joyce L


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 Post subject:
PostPosted: Sat Nov 15, 2008 11:15 am 
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Joined: Mon Oct 15, 2007 2:00 am
Posts: 1154
Location: illinois
Highscores: 3
Tracy,
Really good to hear from you. Although you think you may not be writing as well as you used to, there certainly is no evidence of it on here.

I hope the news from your surgeon on tuesday will be good. We will be thinking and praying for you, and with you in spirit. When you have a chance, let us know the outcome. Although we miss you being here on a regular basis, we all know that you have been busy and working so very hard on the camp. And the Demetiarescue site that your on needs you and your help and encouragement. I went on it yesterday, and its good to see that there are other EOAD people on there for you to communicate with.

God be with you Tracy, and we'll be looking forward to hearing from you whenever you can.

Jackie

_________________
Friends witness sadness and catch tears with tenderness.


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 Post subject:
PostPosted: Sun Nov 16, 2008 6:33 pm 
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Joined: Sun Oct 21, 2007 11:36 pm
Posts: 372
Location: Chicago, IL USA
Highscores: 3
Hi Tracey,
So glad to hear from you!! We missed you but we understand.
You are amazing!
Peace
Eileen


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 Post subject:
PostPosted: Wed Nov 19, 2008 9:05 pm 
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Joined: Thu Oct 11, 2007 9:15 pm
Posts: 447
Location: Waterford MI
Thank you Tracy, for posting about how things are going. Of course we understand if you can't check in all the time. I'm sorry to hear you're hurt, but I am glad your husband is helping you so much. I think everyone here thinks of you as a very special member of this forum and we are glad to hear from you when you do have a chance to post here.

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Judy, caregiver to my mom, Joan


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 Post subject:
PostPosted: Thu Nov 20, 2008 6:42 pm 
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Joined: Wed Oct 31, 2007 7:25 pm
Posts: 410
Location: NW Washington
Tracy:
I do hope you are doing better. I appreciated that you were able to reply. You have been such a help in trying to grasp this whole disease---telling what its like on the inside when we don't really understand what is going on with those we care about or have cared for. I know in caring for mom I used your experiences and various writtings that you did to try to get sibs somewhat on bored as to what was going on...I do thank you for that.
I have been a bit low profile that past few months but still am curious as to if the documantary was ever done.
Take care of yourself---keep you and your family in my prayers. Thanks again for all you have done and continue to do...
karen

_________________
Real Reason
There are things you do because they feel right & they may make no sense & they may make no money & it may be the real reason we are here: to love each other & to eat each other's cooking & say it was good.
storypeople.com
"


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